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Leber's Hereditary Optic Neuropathy Society grants and how to apply

Trust / foundation · Charity no. 1157206

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69 open or forthcoming · Charity / VCSE · Health / saving of lives

Leber's Hereditary Optic Neuropathy Society is a charity registered in England and Wales under number 1157206. The Charity Commission register lists its area of operation as Ireland, Scotland, Northern Ireland and Isle of Man. The register describes its activities as: “We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.” Its charitable objects are: “1. To relieve the charitable needs of people affected by leber’s Hereditary Optic Neuropathy (“lhon)”, their families and cares by the provision of support, advocacy, advice and information. 2. To carry out, or to provide funds to support research in all aspects of lhon, its causes, treatment and cure and publish the…” In the year to 31 May 2025 it reported income of £2,265 and spending of £15.7k.

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About this funder

From the charity register and the funder's published information.

Latest income

£2,265

Latest spending

£15.7k

What it funds
Health / saving of livesDisability
Who it helps
People with disabilities
How it gives
Makes grants to organisationsProvides advocacy / advice / informationSponsors or undertakes research
Finances by year (Charity Commission)
Year endingIncomeSpending
31 May 2025£2,265£15.7k
31 May 2024£11.1k£2,916
31 May 2023£4,247£13.8k
31 May 2022£21.4k£152
31 May 2021£1,108£123

Charitable objects

1. To relieve the charitable needs of people affected by leber’s Hereditary Optic Neuropathy (“lhon)”, their families and cares by the provision of support, advocacy, advice and information. 2. To carry out, or to provide funds to support research in all aspects of lhon, its causes, treatment and cure and publish the useful results of such research.

Where it operates

Ireland, Scotland, Northern Ireland, Isle of Man

Also known as
Lhon Society
Trustees
3

What Leber's Hereditary Optic Neuropathy Society funds

Leber's Hereditary Optic Neuropathy Society is registered under the Charity Commission purposes health / saving of lives and disability for people with disabilities; the register records that it makes grants to organisations, provides advocacy / advice / information and sponsors or undertakes research. Over its last 5 reported years, to 31 May 2025, it spent £32.7k in total.

How to apply to Leber's Hereditary Optic Neuropathy Society

OpenGrant has not found an open scheme from Leber's Hereditary Optic Neuropathy Society in its sources (last checked 4 Nov 2026). Its website (lhonsociety.org) may list programmes that are not yet open or are by invitation only. OpenGrant does not take applications; always check the funder's own guidance.

Questions about Leber's Hereditary Optic Neuropathy Society

Is Leber's Hereditary Optic Neuropathy Society open for applications now?

Not in OpenGrant's sources as of 4 Nov 2026: no open or forthcoming scheme from Leber's Hereditary Optic Neuropathy Society is listed. Check the funder's website for programmes that are not yet open or that it does not advertise.

Where does Leber's Hereditary Optic Neuropathy Society fund?

The Charity Commission register lists its area of operation as Ireland, Scotland, Northern Ireland and Isle of Man.

Does Leber's Hereditary Optic Neuropathy Society give grants to individuals?

The Charity Commission register records that Leber's Hereditary Optic Neuropathy Society makes grants to organisations, not that it makes grants to individuals.

How much does Leber's Hereditary Optic Neuropathy Society give each year?

The register does not break out Leber's Hereditary Optic Neuropathy Society's grants for its latest year (only charities with income over £500,000 file that detail). Its total spending in the year to 31 May 2025 was £15.7k. Over its last 5 reported years its spending averaged £6,548 a year.

How large is Leber's Hereditary Optic Neuropathy Society?

In its latest reported year Leber's Hereditary Optic Neuropathy Society reported income of £2,265 and spending of £15.7k.

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