# Leber'S Hereditary Optic Neuropathy Society

- Type: Trust / foundation
- Charity number: 1157206 (https://register-of-charities.charitycommission.gov.uk/charity-search/-/charity-details/1157206)
- Website: http://www.LHONSociety.org/
- Latest income: £2,265; spending £15.7k
- What it funds: Health / saving of lives, Disability
- Who it helps: People with disabilities
- How it gives: Makes grants to organisations, Provides advocacy / advice / information, Sponsors or undertakes research
- Area of operation: Ireland, Scotland, Northern Ireland, Isle of Man
- Other names: Lhon Society (working)
- Trustees: 3
- Last verified: 2026-11-04T00:00:00.000Z
- Canonical URL: https://opengrant.co.uk/funders/lebers-hereditary-optic-neuropathy-society

We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.

## Open and forthcoming schemes (0)

None in OpenGrant's sources right now.

## Finances by year (Charity Commission)

| Year ending | Income | Spending | Grants to organisations |
|---|---|---|---|
| 31 May 2025 | £2,265 | £15.7k | not filed |
| 31 May 2024 | £11.1k | £2,916 | not filed |
| 31 May 2023 | £4,247 | £13.8k | not filed |
| 31 May 2022 | £21.4k | £152 | not filed |
| 31 May 2021 | £1,108 | £123 | not filed |

## Charitable objects

> 1. To relieve the charitable needs of people affected by leber’s Hereditary Optic Neuropathy (“lhon)”, their families and cares by the provision of support, advocacy, advice and information. 2. To carry out, or to provide funds to support research in all aspects of lhon, its causes, treatment and cure and publish the useful results of such research.

## What it funds

Leber'S Hereditary Optic Neuropathy Society is registered under the Charity Commission purposes health / saving of lives and disability for people with disabilities; the register records that it makes grants to organisations, provides advocacy / advice / information and sponsors or undertakes research. In its latest reported year Leber'S Hereditary Optic Neuropathy Society reported income of £2,265 and spending of £15.7k. Over its last 5 reported years, to 31 May 2025, it spent £32.7k in total.

The Charity Commission register lists its area of operation as Ireland, Scotland, Northern Ireland and Isle of Man.

## How to apply

OpenGrant has not found an open scheme from Leber'S Hereditary Optic Neuropathy Society in its sources (last checked 4 Nov 2026). Its website (lhonsociety.org) may list programmes that are not yet open or are by invitation only. OpenGrant does not take applications; always check the funder's own guidance.

## Questions

### Is Leber'S Hereditary Optic Neuropathy Society open for applications now?

Not in OpenGrant's sources as of 4 Nov 2026: no open or forthcoming scheme from Leber'S Hereditary Optic Neuropathy Society is listed. Check the funder's website for programmes that are not yet open or that it does not advertise.

### Where does Leber'S Hereditary Optic Neuropathy Society fund?

The Charity Commission register lists its area of operation as Ireland, Scotland, Northern Ireland and Isle of Man.

### Does Leber'S Hereditary Optic Neuropathy Society give grants to individuals?

The Charity Commission register records that Leber'S Hereditary Optic Neuropathy Society makes grants to organisations, not that it makes grants to individuals.

### How much does Leber'S Hereditary Optic Neuropathy Society give each year?

The register does not break out Leber'S Hereditary Optic Neuropathy Society's grants for its latest year (only charities with income over £500,000 file that detail). Its total spending in the year to 31 May 2025 was £15.7k. Over its last 5 reported years its spending averaged £6,548 a year.

### How large is Leber'S Hereditary Optic Neuropathy Society?

In its latest reported year Leber'S Hereditary Optic Neuropathy Society reported income of £2,265 and spending of £15.7k.


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