# Cdkl5 UK

- Type: Trust / foundation
- Charity number: 1207922 (https://register-of-charities.charitycommission.gov.uk/charity-search/-/charity-details/1207922)
- Website: https://www.curecdkl5.org.uk
- Latest income: £60.1k; spending £29.1k
- What it funds: Disability
- Who it helps: Children / young people, People with disabilities, People of a particular ethnic or racial origin, Other charities or voluntary bodies
- How it gives: Makes grants to organisations, Provides services, Provides advocacy / advice / information
- Last verified: 2026-10-16T00:00:00.000Z
- Canonical URL: https://opengrant.co.uk/funders/cdkl5-uk

To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.

## Open and forthcoming schemes (0)

None in OpenGrant's sources right now.

## What it funds

Cdkl5 UK is registered under the Charity Commission purposes disability for children / young people, people with disabilities, people of a particular ethnic or racial origin and other charities or voluntary bodies; the register records that it makes grants to organisations, provides services and provides advocacy / advice / information. In its latest reported year Cdkl5 UK reported income of £60.1k and spending of £29.1k.

## How to apply

OpenGrant has not found an open scheme from Cdkl5 UK in its sources (last checked 16 Oct 2026). Its website (curecdkl5.org.uk) may list programmes that are not yet open or are by invitation only. OpenGrant does not take applications; always check the funder's own guidance.

## Questions

### Is Cdkl5 UK open for applications now?

Not in OpenGrant's sources as of 16 Oct 2026: no open or forthcoming scheme from Cdkl5 UK is listed. Check the funder's website for programmes that are not yet open or that it does not advertise.

### Does Cdkl5 UK give grants to individuals?

The Charity Commission register records that Cdkl5 UK makes grants to organisations, not that it makes grants to individuals.

### How large is Cdkl5 UK?

In its latest reported year Cdkl5 UK reported income of £60.1k and spending of £29.1k.


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## Guides

- [How to apply to the Henry Smith Foundation: programmes open now, typical awards and dates](https://opengrant.co.uk/blog/how-to-apply-to-henry-smith-charity)