# Anisia'S Hope - Fighting Batten Disease

- Type: Trust / foundation
- Charity number: 1219714 (https://register-of-charities.charitycommission.gov.uk/charity-search/-/charity-details/1219714)
- Website: https://fightingbattendisease.org
- What it funds: Education / training, Health / saving of lives, Disability
- Who it helps: Children / young people, People with disabilities, The general public
- How it gives: Makes grants to individuals, Makes grants to organisations, Provides services, Provides advocacy / advice / information, Sponsors or undertakes research
- Area of operation: Throughout England and Wales, Spain, Germany, United States, Italy
- Trustees: 3
- Last verified: 2026-11-04T00:00:00.000Z
- Canonical URL: https://opengrant.co.uk/funders/anisias-hope-fighting-batten-disease

We support children, young people and adults affected by Batten disease (neuronal ceroid lipofuscinoses, CLN1-CLN14). Recently registered, we currently provide information, advice and signposting, and are establishing support covering equipment, therapies and services. We will fund research into causes, treatment, prevention and cure, and educate the public, professionals and carers.

## Open and forthcoming schemes (0)

None in OpenGrant's sources right now.

## Charitable objects

> The objects of the CIO are for the public benefit: to preserve and protect the health of children, young people and adults affected by neuronal ceroid lipofuscinoses (ncl), commonly known as Batten Disease, including cln2 Disease and related forms by; (1) Providing or assisting in the provision of support, equipment, therapies, and services; (2) Providing grants of financial assistance to organisations and individuals undertaking research into the causes, treatment, prevention and cure of Batten Disease and to publish the useful results of such research; (3) Advancing the education of the public, medical professionals and carers in all matters relating to Batten Disease, including early diagnosis and available treatments.

## What it funds

Anisia'S Hope - Fighting Batten Disease is registered under the Charity Commission purposes education / training, health / saving of lives and disability for children / young people and people with disabilities; the register records that it makes grants to individuals, makes grants to organisations, provides services, provides advocacy / advice / information and sponsors or undertakes research.

The Charity Commission register lists its area of operation as England and Wales, Spain, Germany, United States and Italy.

## How to apply

OpenGrant has not found an open scheme from Anisia'S Hope - Fighting Batten Disease in its sources (last checked 4 Nov 2026). Its website (fightingbattendisease.org) may list programmes that are not yet open or are by invitation only. OpenGrant does not take applications; always check the funder's own guidance.

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