# Alternating Hemiplegia of Childhood UK

- Type: Trust / foundation
- Charity number: 1192701 (https://register-of-charities.charitycommission.gov.uk/charity-search/-/charity-details/1192701)
- Website: https://ahcuk.org
- Latest income: £534; spending £13k
- What it funds: Education / training, Health / saving of lives, Disability
- Who it helps: Children / young people, Older people, People with disabilities, The general public
- How it gives: Makes grants to organisations, Provides advocacy / advice / information, Sponsors or undertakes research
- Area of operation: Throughout England and Wales
- Other names: Ahc UK (working)
- Trustees: 5
- Last verified: 2026-11-04T00:00:00.000Z
- Canonical URL: https://opengrant.co.uk/funders/alternating-hemiplegia-of-childhood-uk

To preserve and protect the physical and mental health of families and individuals affected by Alternating Hemiplegia of Childhood (AHC) and associated conditions by:- (a) Providing support and creating and maintaining communication channels between those persons who act as family carers and supporters so as to disseminate knowledge, experience and thereby promote both the health and quality o

## Open and forthcoming schemes (0)

None in OpenGrant's sources right now.

## Finances by year (Charity Commission)

| Year ending | Income | Spending | Grants to organisations |
|---|---|---|---|
| 31 May 2025 | £534 | £13k | not filed |
| 30 Apr 2024 | £8,732 | £11.5k | not filed |
| 30 Apr 2023 | £123k | £45.5k | not filed |
| 5 Apr 2022 | £0 | £0 | not filed |

## Charitable objects

> The objects of the CIO are:to preserve and protect the physical and mental health of families and individuals affected by Alternating Hemiplegia of Childhood (ahc) and associated conditions by:-(a) Providing support and creating and maintaining communication channels between those persons who act as family carers and supporters so as to disseminate knowledge, experience and thereby promote both the health and quality of life of ahc patients and their families;(b) Raising awareness and education of the medical profession and other relevant professionals (including but not limited to psychologists, care workers, school teachers, therapists and suchlike), together with the general public, on the nature of ahc (and associated conditions) and its implication for families;(c) Acting as an advocate with public servants and organisations within the UK (other than those included in object 2) so as to become the voice of ahc families;(d) Promoting, encouraging and facilitating research into the diagnosis, effective management and therapies, and potential curative procedures; and(e) Establishing and maintaining close links with counterpart organisations, researchers and such like that are based outside the United Kingdom, and to disseminate the growing body of knowledge into this rare condition amongst interested persons and parties within the UK

## What it funds

Alternating Hemiplegia of Childhood UK is registered under the Charity Commission purposes education / training, health / saving of lives and disability for children / young people, older people and people with disabilities; the register records that it makes grants to organisations, provides advocacy / advice / information and sponsors or undertakes research. In its latest reported year Alternating Hemiplegia of Childhood UK reported income of £534 and spending of £13k. Over its last 4 reported years, to 31 May 2025, it spent £70k in total.

The Charity Commission register lists its area of operation as England and Wales.

## How to apply

OpenGrant has not found an open scheme from Alternating Hemiplegia of Childhood UK in its sources (last checked 4 Nov 2026). Its website (ahcuk.org) may list programmes that are not yet open or are by invitation only. OpenGrant does not take applications; always check the funder's own guidance.

## Questions

### Is Alternating Hemiplegia of Childhood UK open for applications now?

Not in OpenGrant's sources as of 4 Nov 2026: no open or forthcoming scheme from Alternating Hemiplegia of Childhood UK is listed. Check the funder's website for programmes that are not yet open or that it does not advertise.

### Where does Alternating Hemiplegia of Childhood UK fund?

The Charity Commission register lists its area of operation as England and Wales.

### Does Alternating Hemiplegia of Childhood UK give grants to individuals?

The Charity Commission register records that Alternating Hemiplegia of Childhood UK makes grants to organisations, not that it makes grants to individuals.

### How much does Alternating Hemiplegia of Childhood UK give each year?

The register does not break out Alternating Hemiplegia of Childhood UK's grants for its latest year (only charities with income over £500,000 file that detail). Its total spending in the year to 31 May 2025 was £13k. Over its last 4 reported years its spending averaged £17.5k a year.

### How large is Alternating Hemiplegia of Childhood UK?

In its latest reported year Alternating Hemiplegia of Childhood UK reported income of £534 and spending of £13k.


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